From EventsPE.com, Lakewood, California
PKD Fundraiser for NYC Marathon - Special Concert & Wine Event
PKD Fundraiser will be held on July 28, 2013 at 5 PM at a residence located at 4145 Ann Arbor Road, Lakewood, CA 90712. Buy tickets to attend.
From MySanAntonio.com San Antonio, Texas
Annual San Antonio Walk for PKD
takes place Sept. 21 at O.P. Schnabel Park (Graff Pavilion), 9600 Bandera Road, starting at 9:15 a.m. Registration begins at 7:30 a.m. There'll be pre- and post-walk activities for the whole family. Contact Patti Ruffin at 210-414-6614 or sanantoniowalk@pkdcure.org.
From Darlington & Stockton Times, United Kingdom
Riders from Darlington, Northallerton and Bishop Auckland tackle seven mountain bike trails in seven days for charity
THREE plucky cyclists are halfway through their epic fundraising mission to tackle some of the world’s toughest mountain bike tracks in seven days.
After months of preparation Peter Wilson, 41, from Darlington, 32-year-old Paul Simpson, from Northallerton, and 42-year-old Robert Bell, from Bishop Auckland are riding Scotland’s world-famous 7stanes mountain bike network in seven days to raise money for the Polycystic Kidney Disease Charity and TFM’s Cash for Kids.
The 7stanes feature some of the most gruelling mountain bike tracks in the country and take in hundreds of miles of the Scottish Borders and Dumfries and Galloway.
The ride, which began on Friday (July 5) at Newcastleton in the Scottish Borders, will end on Sunday at Glentress, near Edinburgh, to coincide with National Transplant Week after Mr Wilson, who suffers from polycystic kidney disease, underwent a kidney transplant in January 2011. [Read more]
After months of preparation Peter Wilson, 41, from Darlington, 32-year-old Paul Simpson, from Northallerton, and 42-year-old Robert Bell, from Bishop Auckland are riding Scotland’s world-famous 7stanes mountain bike network in seven days to raise money for the Polycystic Kidney Disease Charity and TFM’s Cash for Kids.
The 7stanes feature some of the most gruelling mountain bike tracks in the country and take in hundreds of miles of the Scottish Borders and Dumfries and Galloway.
The ride, which began on Friday (July 5) at Newcastleton in the Scottish Borders, will end on Sunday at Glentress, near Edinburgh, to coincide with National Transplant Week after Mr Wilson, who suffers from polycystic kidney disease, underwent a kidney transplant in January 2011. [Read more]
From ThisIsLeicestershire.co.uk, United Kingdom
Pete's on fast track to boost organ donation
A bike enthusiast whose life was saved by a kidney transplant has joined forces with a top motorcycle racer to get more people to become organ donors.
Farmer Pete Elliott, from Donington le Heath, knows he owes his new lease of life to a donor...
...The 40-year-old wanted to promote the need for organ donation and after his operation enlisted the help of a young racer from the MotoGP series, Danny Webb.
Pete said: "I have an absolute passion for motorbikes, so it seemed a good way of combining a personal passion with promoting organ donation.
"I had met Danny a few years before and liked him and got on with hid dad and manager Steve Burgess, so thought I could help him out a little bit and help raise awareness of organ donation at the same time.
"I wanted the biking industry to be a bit more aware of the importance of donation.
"I will always be grateful to my donor and it is nice to be able to do something to help out the thousands of others who are in the situation I was in before I got my transplant."
Pete, who farms in Ibstock, has sponsored the rider to wear the national organ donation logo on his leathers.
It carries the web address of NHS Blood and Transplant's donation website and is being seen potentially by millions of people around the world. [Read more]
Farmer Pete Elliott, from Donington le Heath, knows he owes his new lease of life to a donor...
...The 40-year-old wanted to promote the need for organ donation and after his operation enlisted the help of a young racer from the MotoGP series, Danny Webb.
Pete said: "I have an absolute passion for motorbikes, so it seemed a good way of combining a personal passion with promoting organ donation.
"I had met Danny a few years before and liked him and got on with hid dad and manager Steve Burgess, so thought I could help him out a little bit and help raise awareness of organ donation at the same time.
"I wanted the biking industry to be a bit more aware of the importance of donation.
"I will always be grateful to my donor and it is nice to be able to do something to help out the thousands of others who are in the situation I was in before I got my transplant."
Pete, who farms in Ibstock, has sponsored the rider to wear the national organ donation logo on his leathers.
It carries the web address of NHS Blood and Transplant's donation website and is being seen potentially by millions of people around the world. [Read more]
From The Weston Mercury, United Kingdom
TWO postmen from Weston have donated £1,260 to Southmead Hospital’s renal unit after undergoing kidney operations.The Weston Mercury reported in April how Chalkie (Charles Czajkowski) donated his kidney to friend and colleague Ian Shillcock who was diagnosed with polycystic kidney disease.
The pair went under the knife at Southmead Hospital and after a successful recovery, the friends have now returned to work at Royal Mail in Weston.
Postman Chalkie, aged 44, and Ian, who works in the company’s sorting office in Warne Road, also started an appeal to raise money for the renal unit at Southmead Hospital.
They put a collection box at the sorting office and sold wristbands for the cause and were overwhelmed with the response.
Thanks to generous well-wishers, the pair have handed over £1,260 to the Richard Bright Renal Unit. [Read more]
A drug therapy shows promise for treating an inherited form of kidney disease called autosomal dominant polycystic kidney disease (ADPKD), Mayo Clinic researchers say. The medication, tolvaptan, slowed the pace of kidney cyst growth over the three years of the study. [Read more]
From The DailyRecord.com, Washington State
Madeline (Maddie) Schlesinger has long had a passion for film and television, intrigued, she says, by their potential to inspire.
When she graduated from high school in the Shoreline area near Seattle, she headed to Central Washington University to study filmmaking. This March, her documentary production instructor gave a final assignment: to make a documentary that was compelling.
Schlesinger delivered, producing a film that both she and the subject of her documentary, Claudia Osmonovich, hope will help save Osmonovich’s life as well as the lives of others like her.
Kidney disease
Osmonovich, married and the mother of two teenage children, was 7-years-old and living in California when she was diagnosed with Polycystic Kidney Disease (PKD), a condition that causes cysts to grow on the kidneys. Over time, kidney function declines, eventually forcing patients to seek transplants or go on to dialysis. Osmonovich, 41, who owns the Cle Elum Bakery with her husband, Ivan, hopes for a kidney from a living donor in part because kidneys from living donors tend to begin functioning more quickly and last longer than cadaver kidneys.
Last fall, Osmonovich, whose two children also have been diagnosed with PKD, learned her kidney function had declined to a point where she needed to consider dialysis or a transplant. {Read more]
The first consultant basically said I was doomed and would have kidney failure by the time I reach middle age (am 23). The second consultant said there's nothing to worry about, that I'll just need to keep an eye out for infections.
I really haven't a clue what to think? Am waiting to see kidney dr.
Does anyone have any experience with PKD? I suppose I'm just wondering how it might restrict my life down d line. For eg. I heard you shouldn't have anymore kids?! Should limit salt and alcohol etc [Read more]
Before my daughter was diagnosed with two life-threatening diseases, I don't think I paid much attention to all the different days and months set aside for "awareness." Now that my life revolves around tuberous sclerosis complex and polycystic kidney disease, [Read more]
When she graduated from high school in the Shoreline area near Seattle, she headed to Central Washington University to study filmmaking. This March, her documentary production instructor gave a final assignment: to make a documentary that was compelling.
Schlesinger delivered, producing a film that both she and the subject of her documentary, Claudia Osmonovich, hope will help save Osmonovich’s life as well as the lives of others like her.
Kidney disease
Osmonovich, married and the mother of two teenage children, was 7-years-old and living in California when she was diagnosed with Polycystic Kidney Disease (PKD), a condition that causes cysts to grow on the kidneys. Over time, kidney function declines, eventually forcing patients to seek transplants or go on to dialysis. Osmonovich, 41, who owns the Cle Elum Bakery with her husband, Ivan, hopes for a kidney from a living donor in part because kidneys from living donors tend to begin functioning more quickly and last longer than cadaver kidneys.
Last fall, Osmonovich, whose two children also have been diagnosed with PKD, learned her kidney function had declined to a point where she needed to consider dialysis or a transplant. {Read more]
From Boards.ie
I was recently diagnosed with this disease. It came to light after I got really sick 6 weeks after having my baby. I had a REALLY bad kidney infection so was in hospital for a week and went for a number of scans.The first consultant basically said I was doomed and would have kidney failure by the time I reach middle age (am 23). The second consultant said there's nothing to worry about, that I'll just need to keep an eye out for infections.
I really haven't a clue what to think? Am waiting to see kidney dr.
Does anyone have any experience with PKD? I suppose I'm just wondering how it might restrict my life down d line. For eg. I heard you shouldn't have anymore kids?! Should limit salt and alcohol etc [Read more]
From the Island Packet.com, Hilton Head
There seems to be an overabundance of "awareness" efforts out there. You see it on Facebook. On Twitter. You see it in the newspaper, on TV and in your mailbox. "Help us raise money for this." "Come walk with us to raise awareness of that."
Before my daughter was diagnosed with two life-threatening diseases, I don't think I paid much attention to all the different days and months set aside for "awareness." Now that my life revolves around tuberous sclerosis complex and polycystic kidney disease, [Read more]
From PKDWIllNotBeatMe.com, a blog by Vallen Keefer
Out of the corner of my eye, I saw my father walking towards me. I turned my head to the right as I sat in my dialysis chair, and we both gave each other a happy and excited smile. That hopeful day of August 12, 2002 was the last dialysis treatment that I had. He stood by my side as he always has in life, and handed me a present. I excitedly opened it to find a beautiful charm bracelet; the one I am wearing on the cover of my biography, “My Favorite American.” Whenever I wear that special bracelet, it takes me back to that exciting day when I could taste the freedom of no more dialysis. [Read more]
From Montgomery Advertiser, Montgomery, Alabama
The Extra Mile column: Fitness key to woman's recovery following kidney transplant
A ruptured brain aneurysm woke up Rhea Hibbert.
Diagnosed with polycystic kidney disease at age 30, she knew it was a possibility. So was needing a kidney transplant, and going on dialysis. The now 53-year-old lost her father when he was 53. He, too, had been diagnosed with PKD, a kidney disorder passed down through families in which cysts form in the kidneys, causing them to become enlarged.
Hibbert’s father never was a candidate for a kidney transplant.
“Of course, I prayed I could live my whole life without ever needing a transplant or going on dialysis,” she said. “Chances of that were slim.”
The transplant happened on March 8.
Diagnosed with polycystic kidney disease at age 30, she knew it was a possibility. So was needing a kidney transplant, and going on dialysis. The now 53-year-old lost her father when he was 53. He, too, had been diagnosed with PKD, a kidney disorder passed down through families in which cysts form in the kidneys, causing them to become enlarged.
Hibbert’s father never was a candidate for a kidney transplant.
“Of course, I prayed I could live my whole life without ever needing a transplant or going on dialysis,” she said. “Chances of that were slim.”
The transplant happened on March 8.
Staying fit, preparing for a transplant
Hibbert, of Montgomery, has always been physically active. A personal trainer, she was involved in cheerleading and twirling while growing up, and plays tennis, attends Box Mania classes, and runs.
After the brain aneurysm 10 years ago, though, she started taking things more seriously. [Read more]
Her sister Claire Sharp, 49, donated her left kidney to Bridget, on the day she turned 51.
Bridget, of Gosport, was diagnosed with acute polycystic kidney disease around 18 years ago.
Although it was being managed through medicine, in February last year, part-time care worker Bridget was told she needed a kidney transplant.
Today is the start of National Transplant Week, and the sisters want to share their emotional story, so more people will sign the organ donor register. [Read more]
Hibbert, of Montgomery, has always been physically active. A personal trainer, she was involved in cheerleading and twirling while growing up, and plays tennis, attends Box Mania classes, and runs.
After the brain aneurysm 10 years ago, though, she started taking things more seriously. [Read more]
Gifts of Life
From WXYZ.com, ABC News Southfield, Michigan
SOUTHFIELD, Mich. (WXYZ) - Sue Jarbo was blessed with four gifts; sons who she calls her bodyguards. But she's facing a battle her young men can't fight alone. It's a kidney disease that will put her on dialysis in the coming weeks.
“She has a disease called PKD. Polycystic kidney disease," said Sue's son Brandon, "It's transferred down from generation to generation. It's a genetic disease which unfortunately means me and my three younger siblings cannot give her a kidney."
In dire need of a transplant, Brandon, 21, her oldest son, searched for donors. He even put out a Twitter message re-tweeted five thousand times.
"We've just been trying so hard and hard," said Brandon, "And it's just been up and down."
"I'm a tough woman," said Sue, "And I always try to keep looking forward. And everybody knows me as Super Sue."
And even with that positive attitude, Brandon knows his mother's life may be on borrowed time until a donor steps forward.
“I’m not going stop doing what I could to get her a kidney." said Brandon, "She is our everything. She raised all four of us. Any Type-B or Type-O blood, whether it's negative or positive could donate." [Read more]
“She has a disease called PKD. Polycystic kidney disease," said Sue's son Brandon, "It's transferred down from generation to generation. It's a genetic disease which unfortunately means me and my three younger siblings cannot give her a kidney."
In dire need of a transplant, Brandon, 21, her oldest son, searched for donors. He even put out a Twitter message re-tweeted five thousand times.
"We've just been trying so hard and hard," said Brandon, "And it's just been up and down."
"I'm a tough woman," said Sue, "And I always try to keep looking forward. And everybody knows me as Super Sue."
And even with that positive attitude, Brandon knows his mother's life may be on borrowed time until a donor steps forward.
“I’m not going stop doing what I could to get her a kidney." said Brandon, "She is our everything. She raised all four of us. Any Type-B or Type-O blood, whether it's negative or positive could donate." [Read more]
From The Portsmouth News, United Kingdom
IT MAY not be a traditional birthday present, but it’s one that has saved Bridget Malcolm’s life.Her sister Claire Sharp, 49, donated her left kidney to Bridget, on the day she turned 51.
Bridget, of Gosport, was diagnosed with acute polycystic kidney disease around 18 years ago.
Although it was being managed through medicine, in February last year, part-time care worker Bridget was told she needed a kidney transplant.
Today is the start of National Transplant Week, and the sisters want to share their emotional story, so more people will sign the organ donor register. [Read more]
From LosBanosEnterprise, California
Boyfriend prepares to donate kidney to his true love
LOS BANOS The ticking time bomb in Lindsey Miller hit hard recently, sending her to the hospital and putting her on kidney dialysis.
The 23-year-old Los Banos woman was diagnosed with polycystic kidney disease at age 10. The hereditary disease took her grandfather at 52, her uncle at 34 and her aunt at 27. Lindsey's mother, Tammie Miller, has been on dialysis since 2010 and needs a kidney as well.
The chances of finding a donor are slim — statistically speaking, one person in Los Banos is a match for Miller. In a fortunate twist of fate, that one person just happens to sit across the dinner table from her every night.
Miller's boyfriend, Brandon Kelley, is an almost perfect match. Kidney transplant surgery is scheduled for July 19 at California Pacific Medical Center in San Francisco. [Read more]
The 23-year-old Los Banos woman was diagnosed with polycystic kidney disease at age 10. The hereditary disease took her grandfather at 52, her uncle at 34 and her aunt at 27. Lindsey's mother, Tammie Miller, has been on dialysis since 2010 and needs a kidney as well.
The chances of finding a donor are slim — statistically speaking, one person in Los Banos is a match for Miller. In a fortunate twist of fate, that one person just happens to sit across the dinner table from her every night.
Miller's boyfriend, Brandon Kelley, is an almost perfect match. Kidney transplant surgery is scheduled for July 19 at California Pacific Medical Center in San Francisco. [Read more]
From HaverhillEcho, United Kingdom
A woman who benefitted from a kidney transplant and her husband are seeking to raise awareness of the need for organ donations during National Transplant Week next week (July 8 to 14).
Mandy Smith, 46, from Broadcroft Crescent, Haverhill, had polycystickidney disease which caused fatigue and would have led to her going on dialysis, yet that was avoided as she received a kidney transplant at Addenbrooke’s Hospital in May 2012.
Now her and husband Paul, 46, will have a stall at Tesco, where Mandy works, next week to raise awareness of the need for more people to agree to have their organs donated after death. [Read more]
Mandy Smith, 46, from Broadcroft Crescent, Haverhill, had polycystickidney disease which caused fatigue and would have led to her going on dialysis, yet that was avoided as she received a kidney transplant at Addenbrooke’s Hospital in May 2012.
Now her and husband Paul, 46, will have a stall at Tesco, where Mandy works, next week to raise awareness of the need for more people to agree to have their organs donated after death. [Read more]
Natural Remedies
From Kidney Service China.com
Natural Remedies for Enlarged Kidneys due to PKD
1. Renal diet - the best natural treatment for PKD: Drinking water and eat a diet low in protein and sodium.
2. Herbs: Some herbs can help to relieve some symptoms of the disease. The herbs include the following:
Dandelion root - help the kidneys excrete wastes; cranberry - helps to acidify urine; celery and parsley - decrease uric acid; hydrangea and uva ursi - cleanse the urinary tract; buchu and barberry - improve immune function when drunk as a tea and prevent inflammation in the kidneys. [Read more]
Dandelion root - help the kidneys excrete wastes; cranberry - helps to acidify urine; celery and parsley - decrease uric acid; hydrangea and uva ursi - cleanse the urinary tract; buchu and barberry - improve immune function when drunk as a tea and prevent inflammation in the kidneys. [Read more]
Cats Can Get PKD Too
From Catster.com
9 Things You Should Know About Feline Chronic Kidney Disease
A diagnosis of kidney disease can be overwhelming. Here are basics about your cat's illness and treatment, and how to find support. [Read more]
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