Sunday, May 12, 2013

Donate a Life Month, April, has come and gone.  But the need certainly has not gone away.  PKD is a chronic genetic disease which afflicts over 600,000 in the USA and millions more around the world.  In the last few weeks we have seen and posted articles about giving life, treatment options, working to make donations for a cure, research directions and results.  Hope continues.  Make a donation at PKDCure.org, the online home of the PKD Foundation, or take a walk.  Read the news and pass it on.

Make a Donation

From WalkForPKD.org 2013
Unite to Fight PKD
About PKD.  Polycystic kidney disease (PKD) is one of the world's most common, life-threatening genetic diseases. PKD causes fluid-filled cysts to grow on the kidneys affecting kidney function and often leading to kidney failure and death. Parents with PKD have a 50 percent chance of passing it on to their children. Because it is passed from generation to generation, PKD often affects many people in one family.

From AirdrieEcho.com, Airdrie, Alberta, Canada

Local families participate in Kidney March to raise awareness of kidney disease

Two Airdrie families will be embarking on a 100-kilometre trek this fall, doing their part in the fight against kidney disease.
The Nadraszky and Lawrick-Radu families will participate in the Kidney March, where participants walk the incredible distance in three days throughout Kananaskis Country, sleeping in tents each night.
While both have personal reasons for deciding to participate, in the end their decisions rested with wanting to raise awareness about the multiple forms of kidney disease that affect 2.6 million Canadians each year.

From EllesmerePortPioneer.co.uk, Chester, England

Great Sutton London Marathon runner raises Kidney chairty cash

A RUNNER from Great Sutton was the 907th man to finish the London Marathon in his first-ever attempt.
John Stone’s two-year-old nephew, Luke, has a genetic illness called Polycystic kidney disease.
So despite not being sporty at school, 25-year-old John set himself the task of running in the famous race to raise money for Kids Kidney Research.
Friends and family rallied together and John raised more than £3,000 for the charity.

From oldham-chronicle.co.uk, England
An extraordinary act of friendship has given a Shaw man a new lease of life. 

Liz Whitworth and her best friend’s husband Mark Holden are recovering well following a successful kidney transplant. 

Liz (45) underwent surgery to pass on her healthy kidney to Mark, who suffers from a genetic degenerative disorder, Polycystic Kidney Disease. Mark was destined for dialysis without a transplant. 

From yorktown.dailyvoice.com, Yorktown, New York
Yorktown's own Chuck Newman is set to be the guest of honor at the Hudson Valley Chapter of the Polycystic Kidney Disease Foundation's "Cocktails For A Cure." 
The third-annual event and fundraiser is set for 6 p.m. on Thursday at the Vintage Restaurant and Lounge in White Plains. This year's celebration is set to honor Newman and 30 years of research for the PKD Foundation, according to a press release. 
"The evening benefit will honor Charles J. (Chuck) Newman for his ongoing efforts to raise money and awareness of PKD which touches his entire family," representatives said in the release. "Chuck has served as a co-captain for his walk team, Benny’s Brigade in honor of his father who passed away from PKD."
Benny's Brigade has raised more than $41,000 for PKD research, according to the release. Chuck Newman also has volunteered as "a resource to educate individuals and families at local and regional seminars on insurance issues for those affected by PKD," according to the release.

Living with PKD 
From pkdwillnotbeatme.com, written by Valen Keefer
Three years ago today, Noah and I woke up in Colorado Springs, Colorado. Our Volkswagen station wagon was filled with the supplies we needed for our month-long cross-country journey and move from York, Pennsylvania to Auburn, California. It was day number five on the road. A new day. A new horizon of hope.

From dailystrength.org


Treatment Directions
From Vital Signs, Viewpoints, Indiana University
Do medications developed to treat type II diabetes offer hope for patients with polycystic kidney disease? An IUPUI campus collaboration of IU School of Medicine and Purdue School of Science researchers funded by the Indiana Clinical and Translational Sciences Institute may provide the answer.


What is PKD, What are the odds?
From kidneylowerbackpain.com

What is Polycystic Kidney Disease?

“PKD” means polycystic renal system ailment distinguished by the accumulation of numerous cysts on kidney surface area results in boost in its dimension as well as weight. The significance of cyst stuffed kidney could reach 20-30 pounds. It is the most usual genesiology renal disorder gives via households. If each moms and dads are actually carrier of this condition there is 50 % chance for little one to create this condition yet if among the parents brings this the opportunity of its situation in youngster others 25 %. Within this situation youngster performs not create this but simply passes this to the next generation.


From Fu Neng Kidney Disease Hospital

Genetic Odds of Polycystic Kidney Disease

Polycystic Kidney Disease (PKD) refers to one kind of hereditary disease with many or countless cysts filled with fluid in the kidneys. With the progressing of the disease, the cysts will become bigger and bigger. Without effective and timely medical treatment, the cyst enlargement may cause kidney impairment and even Kidney Failure. Well then, how about the genetic odds of Polycystic Kidney Disease?





Research
From The University of Kansas, Medical Center

PKD Rodent Model Drug-Testing Core

The PKD Rodent Model Drug-Testing Core will provide reagents and services to Kidney Institute investigators and to investigators at KUMC and other institutions in established PKD labs or labs new to the PKD field. A number of mouse PKD lines are available for breeding experiments and for tissue harvest. The Core will also provide expertise and experimental support in handling PKD mouse models and in processing and analyzing tissue specimens.


From renalbusiness.com

RESEARCHERS CREATE NEW APPROACHES TO TREAT CHILDHOOD PKD

MILWAUKEE—A collaborative team of physician-scientists at the Medical College of Wisconsin (MCW) and Children's Hospital of Wisconsin Research Institute has developed a new evidence-based, clinical algorithm to help physicians treat complex patients with autosomal recessive polycystic kidney disease (ARPKD), according to a paper in the April 17 Pediatric Transplantation.

No comments:

Post a Comment