From Medicaldaily.com
Ohio Elementary School Teacher Gives Life Lesson With Kidney Donation
Every 10 minutes, a new person is added to the organ transplant waiting list. The wait for a kidney transplant could be between a few months to several years in order to find a good match between recipient and donor. Currently in the United States, there are more than 117,000 people who are waiting for organ transplants, with more than 95,000 who await kidneys, Donate Life New York reports.
8-year-old Ohio student receives kidney transplant from a former kindergarten teacher.
From Daily Mail, United Kingdom
The extra special delivery from the postman who donated his sick colleague a kidney
From Lake Norman Citizen, North Carolina
Lake Norman Charter teacher would give his wife a kidney ... and he is!
Brandon Bates is a teacher in the Social Studies department at Lake Norman Charter High School in Huntersville. Each day, students in his classes learn about historic events, human achievements, how the past shaped the present and how even just one simple act can have a tremendous impact.
And next month, through of mixture of love, fate and circumstance, Bates will conclude his personal evolution into a model of what one person can do for another.
From Gazettelive.co.uk, United Kingdom
Zumbathon in aid of Marley, 4
Help Cure PKD
From PKDCure.org, PKD Foundation
Run For PKD Brochure
Join us in raising awareness, funds and hope for PKD in some of the most high-profile races across the country.
From Chesterchronicle.co.uk, United Kingdom
Former Bishops’ Blue Coat CE High School students is top runner in London Marathon
A FORMER student of Bishops’ Blue Coat CE High School was the 907th man to finish the London Marathon in his first ever attempt. John Stone, of Great Sutton, was running for his two-year-old nephew, Luke, who has a genetic illness called Polycystic kidney disease. Describing himself as ‘not sporty at school’, 25-year-old John set himself the task of running in the famous race to raise money for Kids Kidney Research. Friends and family rallied together and John raised more than £3,000 for the charity.
From PKDClinic.org
Life Expectancy for Polycystic Kidney Disease Stage 5
Once PKD patients’ condition develops stage 5, their low kidney function may urge them to begin dialysis or do kidney transplant. At this time, most of them may be concerned the life expectancy for people with Polycystic Kidney Disease Stage 5. How long can they live with Stage 5 PKD? Can’t they do anything but only wait to die?
From PKDClinic.org
Medical test is a must to diagnose Polycystic Kidney Disease, but aside from medical methods, there are some other factors that also can help to diagnose this genetic kidney problem. The following is the related information about how to diagnose Polycystic Kidney Disease and hope it is helpful.
Living With PKD
From PKDwillnotbeatme.com, written by Valen Keefer
Wonderful To Be Alive
Yesterday I was asked, “How does it feel to be a spokesperson for so many causes where people look at you and the first thing they think of is your kidney issues?” The first thought that popped into my mind was that it makes me happy and proud that I have succeeded and accomplished my goal by having someone ask me that question. This means that I am helping to put a face to kidney disease and raise awareness so that hopefully when we say “PKD,” people will know what it stands for and, most importantly, there will be a cure one day! I had never been asked this question and have been pondering it since yesterday.
From Answers.Yahoo.com
I'm 40 years old with p.k.d. & my kidneys are working at less than 50% whats to expect?
Answer 1: Dialysis treatments are usually used when kidney function has fallen below 25%. I couldn't be so sure with those with PKD though. It's best if you constantly check with your doctor about this just to be on the safe side. I also found some posts at http://www.dialysisinjuryhelpline.com/ that may be of help.
From PKDClinic.org
Can people with Polycystic Kidney Disease eat starfruit? As the weather becomes warm, more and more people prefer to eat more fruits. Starfruit rich in nutrition may be a good choice for them. However, can all people with Polycystic Kidney Disease eat this fruit? The answer will be quite different for people with different conditions.
From DailyStrength.org
I was running about fifty miles a week about a year ago. My doctor suggested I stop running to avoid cyst rupture. I really wasn't feeling bad other than back pain which I thought was from the pounding which I later discovered was kidney pain.
From Kidneyservicechina.com
Energy drinks are many people’s first choice for its delicious taste. However, can polycystic Kidney Disease patients drink energy drinks?
Treatment
From Medpagetoday.com, FDA warning
WASHINGTON -- The kidney drug tolvaptan (Samsca) should be used for no more than 30 days, and should not be prescribed for patients with underlying liver disease, the FDA warned Tuesday.
The drug, which is used to treat low serum sodium levels, "can cause liver injury, potentially requiring liver transplant or death," the agency said in an announcement posted on its website.
From Nephrologynews.com
Researchers have developed a new evidence-based, clinical algorithm to help physicians treat complex patients with autosomal recessive polycystic kidney disease (ARPKD). The research, written by scientists at the Medical College of Wisconsin and the Children's Hospital of Wisconsin Research Institute, appears in the April 17 edition of Pediatric Transplantation. ARPKD is a rare genetic disorder that causes progressive disease of the kidneys and liver.
Research
From Biomedcentral.com, Case report from Japan
We report two cases of MPO-ANCA positive ADPKD. A 60-year-old Japanese woman (case 1) and a 54-year-old Japanese woman (case 2) presented with RPGN featuring severe proteinuria and microscopic hematuria. In both patients percutaneous needle biopsy of the kidney revealed MPO-ANCA-associated CrGN with a paucity of glomerular immunoglobulin staining. Each patient received intravenous methylprednisolone for 3 days, followed by oral prednisolone. Case 1 showed gradual improvement and has not progressed to end-stage renal disease (ESRD), but case 2 developed ESRD requiring hemodialysis within one month despite treatment.
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