What is PKD?
From Piedmont Healthcare
What is polycystic kidney disease (PKD)?
Polycystic kidney disease (PKD) is a genetic disorder characterized by the growth of numerous cysts filled with fluid in the kidneys. PKD cysts can reduce kidney function, leading to kidney failure. People with PKD can also have cysts in the liver and problems in other organs, such as the heart and blood vessels in the brain.
PKD is the fourth leading cause of kidney failure and affects approximately 600,000 people in the U.S. According to the National Kidney Foundation, about 50 percent of people with autosomal dominant form of PKD progress to kidney failure by age 60 and about 60 percent will have kidney failure by age 70.
From PKDClinic.org
Polycystic kidney disease is characterized by many renal cysts in one or both kidneys. There is another renal cystic disease in clinic that is easy to be misdiagnosed with PKD, that is multiple renal cysts. Therefore it is very necessary to know how to distinguish from the two diseases so as to have more targeted and effective treatment.
Polycystic kidney disease is congenital and hereditary. It is caused by gene mutation and in most cases the patients have family history of the disease. Multiple renal cyst will not be passed to the following generations and patients have no family members having the same problem.
Welcome back to the 6th post of PKD News Blog. April is National Donate Life Month. Individuals and families continue to struggle with this chronic kidney disease. Please make a contribution to help ongoing research to find a cure. You can make a contribution to the PKD Foundation at PKDcure.org Read the news and Pass it on!
Families and Individuals
From PKD Foundation
I Know Someone with PKD
As a family member, caregiver or friend of someone with PKD, we want you to be equipped with information to help you and those you care about. This section provides caregiver resources, the basic science of PKD and ways to get involved with the PKD Foundation to make a difference. If you have lost someone to PKD, there are grief resources available.
From The Daily O'Collegian, Oklahoma State University
Students to throw paint for a cure
Can you paint with all the colors of the wind? What about painting for a cure?
Oklahoma State students are invited to the Paint Making a Difference color fight to spread awareness and find a cure for Polycystic Kidney Disease. The color fight will begin today at 5 p.m. on the Classroom Building lawn where participants will receive a t-shirt, goggles, and paint for a $5 ticket.
From The Columbia Star, South Carolina
Kelly got her kidney
When Lindsay McGuire saw her mother, Kelly Fenzel, a few days after Easter earlier this month, she said she was terrified she was going to lose her. Fenzel, a 54-year-old mother of one and a grandmother of three, was in desperate need of a life-saving kidney, but so far, all possible donors had not been a match.
From The Chicago Reader
Committeeman David Fagus, down but not out!
Tonight, a fund-raiser to help the 49th Ward committeeman pay off about $500,000 worth of medical bills.
From Birmingham Mail, UK
Gift of life as Birmingham daughter, 24, donates her kidney to father, 50. The pair were side-by-side on Friday as surgeons removed one of Hayley’s kidneys and transferred it to Michael in a seven-hour operation at University Hospital Coventry and Warwickshire.
Michael, 50, suffers from polycystic kidney disease – a genetic disorder that killed his father and affects daughter Amy and brother Mark.
From Mail & Guardian, South Africa
Artwork goes under the hammer for Diane Victor
Artist Diane Victor, suffering from polycystic kidney disease, is being assisted by the arts community to make a journey to the United States where she will be given life-saving surgery by becoming the recipient of a donated kidney.
From Brighton Patch, Michigan
Brighton Resident Thankful for Gift of Kidney From Teenager
Transplant doctors say it's crucial to spread the word about organ donation and not just during April's Organ Donor Awareness Month. For the past 3 1/2 years, Andrea Langhor, a mother of five and a grandmother to five, has been keenly aware that it was someone's child who saved her life.
From The Northern Iowan, The University of Northern Iowa
Letter: Paired kidney exchanges save lives
I want to say thank you to Beth Monnier for writing about paired kidney exchanges (“Legalize the Cure,” April 9, 2013). This is an important topic that people should know about, and I am personally affected by it.
My mother (and several other family members, maybe even myself) has polycystic kidney disease, a genetic disorder that gradually causes the kidneys' functioning to fail.
My mother was on dialysis for five years before she found a donor match through a paired exchange. Without this paired exchange, my mom may have never received a kidney.
My mother (and several other family members, maybe even myself) has polycystic kidney disease, a genetic disorder that gradually causes the kidneys' functioning to fail.
My mother was on dialysis for five years before she found a donor match through a paired exchange. Without this paired exchange, my mom may have never received a kidney.
Treatment
From KidneyABC.com
Pain in patients with polycystic kidney disease can be both acute and chronic.While it is difficult to manage the pain, it still can be managed with the help of traditional and recently available treatment methods.The following are the causes and management of pain in polycystic kidney disease.
From PKDClinic.org
Can People with Stage 5 Polycystic Kidney Disease Avoid Dialysis?
In Stage 5 Polycystic Kidney Disease, the kidneys usually function at below 15% of their normal capacity that is more likely to cause some healthy problems. Then, the doctor may suggest patients with Stage 5 PKD to start dialysis. Can people with stage 5 Polycystic Kidney Disease avoid dialysis? Is dialysis their only choice without kidney transplant?
From The National Institutes of Health
These resources supplement the information in the Genetics Home Reference condition summary on polycystic kidney disease.
From PRWeb, Tucson, AZ and Austin, TX
...a clinical data standard that provides guidance on the implementation of the CDISC Study Data Tabulation Model (SDTM) to represent PKD data in regulatory submissions.
Research
From The Indian Express
PU, PGI join hands to find cure to kidney ailment
In an attempt to keep pace with research going on among the medical fraternity in the field of stem cells, the Stem Cell and Tissue Engineering department of the Panjab University (PU) in collaboration with the Post Graduate Institute of Medical Education and Research (PGIMER) is researching ways to find out cure for polycystic kidney disease (PKD) through stem cell technique.
From The Examiner.com
Lab-made kidney offers new hope for kidney patients
Now, researchers affiliated with the Center for Regenerative Medicine, Massachusetts General Hospital (Boston, Massachusetts) have bio-engineered a functioning kidney in a rat model. They published their findings online on April 14 in the journal Nature Medicine.
From Nephrology-On Demand, East Carolina University
Tolvaptan in the Treatment of Adult Polycystic Kidney Disease: TEMPO 3:4 Trial
A look at a promising drug to control cyst size, growth, and progression to ESRD in ADKPD patients.
From Pharmaceutical Business Review
FDA accepts Otsuka tolvaptan NDA for priority review
The USFDA has accepted Otsuka Pharmaceutical's new drug application (NDA) of tolvaptan for priority review to treat autosomal dominant polycystic kidney disease (ADPKD). Tolvaptan is believed to reduce the development and growth of kidney cysts thereby slowing down the ADPKD progression.
From The Oxford Journals, Medicine, UK
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