Sunday, February 26, 2017

PKD Life: Need Kidney? Consider Paired Donation; Walk for PKD: Austin, Mayo Clinic Looking for PKD Reseacher

PKD Life

From Bend Bulletin, Central Oregon, Posted by Jan Spitz

Options for kidney transplants

I found The Bulletin’s story about living kidney donors from January especially interesting because I too have polycystic kidney disease, which was at end stage. I would like to share another option for anyone needing a kidney transplant.

My husband volunteered to be my kidney donor, but we were not a match for a direct transplant. Then we joined the kidney “paired donation” program at Legacy Good Samaritan transplant center in Portland. They are members of three paired donor organizations. In six months our transplant coordinator found a donor in Florida who was an excellent match for me and I had my transplant Jan 4. Amazing!

This can be difficult but my heartfelt advice is for you to share your story. Find one person wanting to be your donor. If the two of you are a match then a direct transplant may be an option. But if you do not match, then consider the paired donor option. A caveat: The success of this option may depend on which transplant center you choose. Talk to living-donor coordinators at transplant centers and ask about their participation in paired donor programs. How many paired donor organizations do they belong to? How many paired donor transplants have they done?

The incredible kindness of donors, the paired donor option and the transplant center staff working for me was my ticket to a new kidney. I hope for the same good fortune for others struggling with kidney disease!




From Austin 360

Austin Walk for PKD


April 22, 2017
9:30 am Veterans Memorial Park

Come together for our signature fundraising event to benefit Polycystic Kidney Disease research and awareness. PKD - one of the most common, life-threatening genetic diseases — causes cysts to grow and kidney function to decrease. It affects generations of families, striking both adults and children leading to the need for dialysis and a kidney transplant. The Walk for PKD brings a group of volunteers, walkers and supporters together to unite to find treatments and a cure for polycystic kidney disease. We will continue to walk until no one has to suffer the full effects of this devastating disease. Currently there is no treatment or cure but thanks to our supporters - there is hope! The Austin walk is only 1.3 miles. Refreshments and coffee will be provided by local businesses along with great prize drawings, information and live music. Pre-registration is suggested. The event is free but donations and fundraising is expected. We walk rain or shine!

Price: Free - Donations suggested

http://www.walkforpkd.org/austin
2525 W New Hope Dr. Cedar Park, TX




PKD Research

From Mayo Clinic

Faculty Position in Polycystic Kidney Disease Research (PKD)


The appointee will have a record of research funding and establish a conceptually innovative, independent research program to explore the molecular pathogenesis of PKD. This research program will be supported by and aligned with the goals of the Mayo Clinic Robert M. and the Billie Kelley Pirine Translational PKD Center. The established, internationally competitive research program will collaborate with Mayo PKD scientist on basic, translational and clinical studies, including on interdisciplinary projects.

Credentials of the successful candidate will include a Ph.D, MD, or MD-Ph.D, evidence of high impact research into PKD or a related area, and will be appointed at the Assistant, Associate or full Professor level, depending on experience.

Learn and grow among the best in your field at the nation’s top hospital (U.S.News & World Report, 2016-2017), ranked No. 1 in more specialties than any other care provider. At Mayo Clinic, you’ll use the power of collaboration to achieve the highest standards for medical care and health improvement, working in the largest integrated, not-for-profit medical group practice in the world with over 60,000 employees. You’re invited to contribute to a unique environment that brings together the best in patient care, groundbreaking research and innovative medical education. Being a part of Mayo Clinic allows for more work-life balance, competitive compensation and generous benefits, career security and the ability to manage and coordinate patient care in the most efficient ways possible. Discover these and many other reasons why we’re recognized by FORTUNE magazine as one of the top 100 “Best Companies to Work For”.

CLICK HERE to apply online and learn more about Mayo Clinic and the vast array of opportunities that await you.


©2016 Mayo Foundation for Medical Education and Research. Post offer/pre-employment drug screening is required. Mayo Clinic is an equal opportunity educator and employer (including veterans and persons with disabilities).

No comments:

Post a Comment