From PRUrgent, PKD Foundation of Canada. Hamilton Chapter
| Local Nephrologist to Give Update on Polycystic Kidney Disease Research Nephrologists are working towards an improved understanding of how to prevent the progression of kidney disease. Dr. Scott Brimble MD FRCPC will discuss potential therapies for polycystic kidney disease (PKD). FOR IMMEDIATE RELEASE Recently, research has shown that a drug called Tolvaptan can dramatically slow the development and progression of polycystic kidney disease (PKD) in animal models, and another drug (octreotide) can delay the development of both PKD and polycystic liver disease and may prove to be a potential treatment option for people with liver involvement. Dr. Scott Brimble will discuss these among other potential therapies in his presentation on September 28 in Classroom B of the Juravinski Innovation Tower at St. Joseph's Healthcare Hamilton. The Hamilton Chapter of the PKD Foundation of Canada hosts free informational support meetings six times a year for PKD patients, their families, friends and caregivers. A research overview is offered annually to help members remain current on PKD research developments and so that newly diagnosed patients can learn about the progress science is making to halt this inherited disease. PKD affects an estimated 1 in 500 people worldwide. [Read more] |
From PKD Foundation of Canada
Register Today for the 2014 PKD National Symposium
We’re excited to announce that we will be hosting Canada’s very first PKD Symposium on Saturday, November 22nd! The 2014 PKD Canadian Symposium is open to the public, and will include participants from the PKD medical community and various renal healthcare centres, as well as PKD patients, their families and loved ones.
With the Foundation’s support and that of our partners, we are planning a day filled with valuable information and subject matter relevant to those affected by polycystic kidney disease. We will be hearing from top Canadian and International Key Opinion Leaders in the field; learning about important ways to manage various aspects of one’s PKD diagnosis.
Topics will include:
Eating Healthy with PKD
Learn the Facts: The Basics of ARPKD & ADPKD
Understanding Living Kidney Donation
Update on Canadian Clinical PKD Research
Dealing with the Emotional Aspects of Living with a Chronic Disease
Light breakfast, snacks, lunch and beverages will be provided throughout the day. There is no fee to attend, but we do ask that you register online no later than October 17th
.
We look forward to seeing and hearing from you during the 2014 PKD Canadian Symposium, as we work together to improve PKD awareness and patient care.
We look forward to seeing and hearing from you during the 2014 PKD Canadian Symposium, as we work together to improve PKD awareness and patient care.
Dialysis Concerns
From Los Angles Times, By STUART PFEIFER, CHAD TERHUNE
Shortage of in-home dialysis solution has patients worried
"We definitely consider this a critical situation. The FDA is doing everything we can to address the problem."
- Valerie Jensen, associate director of the Food and Drug Administration's drug shortage program
Unlike the hundreds of thousands of Americans who drive several times a week to a dialysis center, Joanna Galeas relies on an increasingly popular at-home alternative to treat her kidney failure.
Galeas, a 30-year-old Los Angeles resident, is among tens of thousands of U.S. residents who use peritoneal dialysis at home. She fills her abdomen with a sterile solution that helps remove toxins from her blood, a function ordinarily performed by healthy kidneys.
Now, Baxter International Inc., the nation's leading supplier of the home dialysis solution, says it can't keep up with demand and has started rationing the product, directing physicians to limit the number of new patients to whom they prescribe the treatment and reducing the size of shipments sent to existing customers.
Last week, Galeas' shipment of the lifesaving solution didn't arrive, she said. When she was down to her final dose, Baxter made an emergency shipment to her home.
"I was freaking out all weekend until Monday when it arrived," she said.
Baxter, based in Deerfield, Ill., blamed the shortage on an unexpected increase in demand, which it said has outpaced its ability to produce the solution. The company said that the number of U.S. patients using dialysis solution increased 15% in the second quarter compared with a year earlier and that demand for the product "has never been stronger."
The shortage comes as a record number of people in the United States rely on dialysis because their kidneys failed; the U.S. dialysis population has more than doubled since 1995 to more than 400,000. [Read more]
From Los Angles Times, By STUART PFEIFER, CHAD TERHUNE
Shortage of in-home dialysis solution has patients worried
"We definitely consider this a critical situation. The FDA is doing everything we can to address the problem."
- Valerie Jensen, associate director of the Food and Drug Administration's drug shortage program
Unlike the hundreds of thousands of Americans who drive several times a week to a dialysis center, Joanna Galeas relies on an increasingly popular at-home alternative to treat her kidney failure.
Galeas, a 30-year-old Los Angeles resident, is among tens of thousands of U.S. residents who use peritoneal dialysis at home. She fills her abdomen with a sterile solution that helps remove toxins from her blood, a function ordinarily performed by healthy kidneys.
Now, Baxter International Inc., the nation's leading supplier of the home dialysis solution, says it can't keep up with demand and has started rationing the product, directing physicians to limit the number of new patients to whom they prescribe the treatment and reducing the size of shipments sent to existing customers.
Last week, Galeas' shipment of the lifesaving solution didn't arrive, she said. When she was down to her final dose, Baxter made an emergency shipment to her home.
"I was freaking out all weekend until Monday when it arrived," she said.
Baxter, based in Deerfield, Ill., blamed the shortage on an unexpected increase in demand, which it said has outpaced its ability to produce the solution. The company said that the number of U.S. patients using dialysis solution increased 15% in the second quarter compared with a year earlier and that demand for the product "has never been stronger."
The shortage comes as a record number of people in the United States rely on dialysis because their kidneys failed; the U.S. dialysis population has more than doubled since 1995 to more than 400,000. [Read more]
| PKD Awareness From Bedford Daily Voice, Bedford, NY Support People Affected By Kidney Disease At Walk In Bedford Memorial Park  BEDFORD HILLS, N.Y. -- The Hudson Valley Chapter of the PKD Foundation will come together and walk in support of those affected by polycystic kidney disease on Saturday, Sept. 20 at Bedford Hills Memorial Park. Registration for this year’s event is at 9 a.m., with the Walk beginning at 10 a.m. “Walk for PKD is a wonderful opportunity to truly engage the entire community offering a hands-on experience to help understand PKD,” said Darien DaCosta, chapter coordinator of the Hudson Valley Chapter of the PKD Foundation. "We are looking forward to welcoming families, friends and individual supporters to walk with and raise the funds necessary to find a cure for PKD.” Over the past decade, the chapter has raised in excess of $580,000 with more than 1,900 walkers participating. [Read more] From Newark Post, Newark, Delaware Delaware Walk for PKD Saturday, September 20th starting at 9:00 AM and ending at 1:00 PM EDT. We Need You To Walk in 2014 — Unite to Fight PKD Polycystic kidney disease (PKD) is one of the most common, life-threatening genetic diseases affecting thousands in America and millions worldwide. There is no treatment or cure. You can help bring a treatment within reach. The Walk for PKD is the PKD Foundation's largest annual fundraising event. Funds raised from Walks across the country make up nearly one third of our annual budget. The more money our walkers raise, the more we can do in the fight to end PKD! You can help by joining the Walk as a participant, volunteer or donor. Together, we can walk boldly toward a future where no one suffers the full effects of PKD From KSDK.com, St. Louis. MO Walk for PKD this weekend ST. LOUIS – PKD, or polycystic kidney disease, affects 1 in 500 people and is the fourth leading cause of kidney failure. This weekend, you can help those who suffer from it. Glen Kemper joined Newschannel 5 at noon to talk about how PKD affects the body. Watch the video player above to learn more. The Walk for PKD will be held Sunday, Sept. 14 at the Sons of Rest Pavilion inside Tower Grove Park. Walk registration begins at 9:30 a.m. and the walk begins at 11:15 a.m. If you would like to register for the walk, visit the Walk for PKD website. |
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