Life With Kidney and Dialysis Treatments
From Washington Post, by John Kelly, Columnist
Blood brothers: Hyattsville teen wants to create kidney dialysis superheroes
From Washington Post, by John Kelly, Columnist
Blood brothers: Hyattsville teen wants to create kidney dialysis superheroes
In his imagination, Elmer Reyes wears a cape, possesses super strength and can fly. In his imagination, Elmer is a superhero.
Elmer describes his alter ego to me as he sits in a large, padded chair at Children’s National hospital. Two tubes snake from his arm. One removes blood from his body. The other returns it, freshly purified.
“It does what a kidney usually does,” Elmer explains of the machine whirring by his side, “which is clean out my blood and filter it.”
Elmer is 18. He has kidney disease, and for pretty much his entire life, he has come here for hemodialysis three times a week, 21 / 2hours each time.
That’s given him a lot of time to kill. Usually he watches TV or listens to music. But lately Elmer has been thinking about creating a comic book about kids like him.
“The concept is: Patients in dialysis, what makes them strong and what makes them weak?” he says. “What if I made a comic strip that represents us?”
He calls it the Kidney Kids for Justice. [Read more]
From MoneyLife, Mumbai, India, by N MADHAVAN
Are you afraid of the cost of kidney treatment?
Kidney care is taught to patients and also made affordable by this organisation, says
A group of five young nephrologists from Mumbai met on the sidelines of the Indian Society of Nephrology Conference at Nagpur (India) in 2003. Having returned from Canada and Australia, they knew that a lot needs to be done in the dialysis sector in the city of Mumbai. The thought of starting a state-of-the-art stand-alone dialysis centre took shape during their conversations. There were lots of hurdles, but the main issue was ... [Read more]
From Sandzak News, Blog
Healthy kidneys сlеаn уουr blood bу removing excess fluid, minerals, аnd wastes. Thеу аlѕο mаkе hormones thаt keep уουr bones strong аnd уουr blood healthy. Whеn уουr kidneys fail, harmful wastes build up іn уουr body, уουr blood pressure mау rise, аnd уουr body mау retain excess fluid аnd nοt mаkе enough red blood cells. Whеn thіѕ happens, уου need treatment tο replace thе work οf уουr failed kidneys.
Dialysis іѕ thе process οf replacing renal function іn thе absence οf a working kidney. Nеіthеr hemodialysis nοr peritoneal dialysis itself іѕ painful.
Hοw Long Dο People Live οn Kidney Dialysis?
Those undergoing kidney dialysis treatment possess a very general, average life expectancy οf four years.
Indeed, thе cause οf thе kidney failure plays a hυgе role іn thе survival rate fοr those οn dialysis.
Polycystic kidney disease: 94 percent survival through year one, 70 percent through year five аnd 42% аftеr 10 years.
Glomerulonephritis: 88% survival through year one, 58 through year five аnd 37 percent аftеr 10 years.
Obstructive Nephropathy: 82% through year one, 46% through year five аnd 21 percent аftеr 10 years.
Unknown: Seventy-six percent through year one, forty-one percent through year five аnd nineteen percent аftеr ten years.
High Blood Pressure: 77% through year one, 33% through year five аnd 14 аftеr 10 years.
Diabetes: 71 percent through year one, 29% through year five аnd 11 percent аftеr 10 years.
Keep іn mind whеn уου аrе looking аt thеѕе numbers, thаt thеу аrе a blend οf аt lеаѕt two averages. Thе average life span οf dialyzors whο dο follow thеіr exercise, diet аnd treatment prescriptions, аnd thе average life span οf dialyzors whο dο nοt follow thеіr exercise, diet аnd treatment prescriptions.
A careful diet іѕ a very іmрοrtаnt раrt οf thіѕ treatment process tο prevent waste frοm building up dangerously іn thе body between dialysis treatments. If thе diet іѕ nοt properly maintained, a patient mау experience high blood potassium levels, fluid overload, weight loss, аnd bone disease, аmοng οthеr conditions. [Read more]
Gift of Life
PASADENA, Calif. -- What a difference three years can make.
Just ask Clay Taber.
Clay, his wife, Laura, and his parents, Allen and Sandra, are in sunny -- and warm -- California getting ready for today's BCS championship game between Auburn and Florida State in the Rose Bowl.
An Auburn graduate and season-ticket holder since he was 2 -- that is not a typo -- Taber is happy for many reasons, not the least of which is he is healthy again.
Clay was diagnosed in the fall of 2010 with Goodpasture's Syndrome, an autoimmune disorder characterized by kidney disease and lung hemorrhage. No exact cause is known for Goodpasture's disease, which makes the body's immune system fight normal tissues by creating antibodies that attack the lungs and kidneys.
On Jan. 10, 2012, Clay got the greatest of gifts, a kidney transplant that was needed due to this rare disease that was shutting down his kidneys. Emory University Hospital nurse Allison Batson contributed the organ.
So, what does all of this have to do with Auburn football? Plenty.
Clay became ill as Auburn was making a run to an unlikely national title. He spent much of the season in a hospital room and, at 23 years old, he missed his first Auburn home games since he was a toddler.
When Auburn reached the BCS title game in Glendale, Ariz., that year, Clay was stabilized and his parents made the decision to go. Clay's kidneys were in bad shape, and he was having dialysis three times a week. [Read more]
From UC San Diego Health Sources, CA, News Release
Random stadium seat assignment leads to lifesaving transplant surgery
In October 2013, Louis Munoz donated one of his kidneys to William Lynch. The organ match would not have occurred without a bit of serendipity and a big love of football. Munoz and Lynch had been childhood friends, but hadn’t seen each other in years – then they found themselves randomly seated next to each other at a Chargers game.
“Louis and I knew each other as kids and then lost touch. Years later, by surprise, we ended up sitting right next to each other at Chargers games,” said William, a middle school teacher. “When I started missing games, Louis asked me why and I explained that due to kidney complications, I’d been unwell. His wife half-jokingly suggested that he give me a kidney.”
Louis immediately volunteered to be tested as a possible donor. William initially declined his friend’s offer, believing another donor would come through. But when that didn’t happen, Louis followed through and proved to be a match.
“I am so blessed that Louis has chosen to give me this new lease on life,” said William. “I can’t express to him how grateful I am. I promised Louis I will take care of this kidney the best that I can.” [Read more]
From The Bolton News, United Kingdom
Generous friend donates kidney to Hindley mum
A MUM-of-two has been granted a lifeline by a generous friend who has donated a kidney to her.
Helen Cavanagh, aged 51, selflessly offered to give up her kidney to herwork colleague Julie Rogers, who suffers from polycystic kidney disease and had to have both kidneys taken out in 2011.
Julie, who lives in Hindley, has been on dialysis three times a week since, and Helen was so shocked when she realised how ill her friend was that she offered her the ultimate gift of life.
Julie, aged 45, said: “We have worked together for a long time and when I had my kidney removed in November 2011, she was a great support. And then she just told me one day around Easter this year she wanted to be a donor for me.
“Before then we had never been really really close, so I was completely overwhelmed. I couldn’t believe it. I almost didn’t want to get too excited in case she changed her mind, because that does happen sometimes.
“But Helen just said she had already thought about it and she wanted to do it and be able to help in whatever way she could. I accepted the offer and we haven’t looked back since.”
Julie, mum to Sophie, aged 19, and Jordan, aged 22, works at RBS in Bolton. She started working with Helen, a project manager for RBS in Manchester, 16 years ago.
The operation, which went ahead on Friday, was a success and now both women are recovering well at Manchester Royal Infirmary. [Read more]
PKD and Kidney Fundraising
From Lancashire Telegraph, United Kingdom
BLACKBURN with Darwen mayor Salim Mulla’s family have arranged a fun day to raise funds for his official charity kidney care appeal.
The appeal aims to raise £50,000 for two dialysis machines for the Blackburn Royal Hospital as borough residents currently have to travel to Preston or Accrington for renal care.
Coun Mulla made raising cash for the machines his mayoral charity after his wife Sayeeda suffered kidney disease and needed dialysis while waiting six years for a transplant. He paid a visit to the hospital just before Christmas, chatting with patients and staff.
The fun day will be on February 16 at Audley Sports Centre on Chester Street.
Organiser Kirstine Cubis, of Arden Road, had been a dialysis patient for more than three years before she received a new kidney in May.
The plight of a Hamilton woman who underwent a kidney transplant six months ago has inspired more than £3500 in fundraising for a Lanarkshire kidney charity.
The money for Lanarkshire Kidney Patients’ Association was raised during a night at Hamilton’s Barleycorn pub which was attended by more than 150 people
Kirstine Cubis, of Arden Road, had been a dialysis patient for more than three years before she received a new kidney in May.
She and her sister Elaine Zanjani of High Earnock both suffer from polycystic kidney disease – a hereditary condition which claimed the life of their mother Joan.
Mrs Cubis had lived in Elgin Terrace with husband George until her death in the early 1990s aged 59.
Kirstine and Elaine’s brother Derek and sister Patricia fortunately do not carry the gene responsible for the condition.
Each of those attending the September fundraising night at the Barleycorn paid a £5 entry fee.
Cash was also raised through a tombola and a raffle with prizes which included a holiday in Dubai.
Forty-four-year-old Kirstine said: “I’m really touched that so many people took part. I’d like to thank everyone who supported me and a cause very close to my heart and my family’s hearts and help raise awareness of organ donation and the excellent work of the staff at the renal unit of Monklands Hospital. I’m really grateful.
“I’d especially like to thank Barleycorn managers Clare Paterson and Ann Laughlan for the use of the pub’s function room and their donation of food for the event.”
The sum of £492 also came from Jean Ward of Hamilton who ran the Great Scottish Run half marathon. Mrs Ward is the mum of Kirstine’s son Stephen’s girlfriend Nicole. And £250 came from relatives Neil and Mandy Teras of Hamilton who raised the money during Neil’s 40th birthday party.
Kirstine and Elaine were diagnosed with polycystic kidney disease after their mother’s diagnosis in the late 1980s.
Before her transplant, Kirstine had to attend three four-hour dialysis sessions every week.
She explained: “Every patient is different, but one of the symptoms of the disease for me was a constant tiredness. The treatment helped me cope with daily life.”
Sister Elaine is currently on the waiting list for a kidney transplant, and following her transplant Kirstine attends Monklands Hospital’s renal unit on a monthly basis.
The money donated to Lanarkshire Kidney Patients’ Association helped fund Christmas presents for kidney patients, an arts and crafts programme and a summer trip. [Read more]
Dialysis Research
From MarketWatch.com, Press Release
Rockwell Medical Announces Triferic(TM) PRIME ESA Sparing Study Selected as Best Abstract at 34th Annual Dialysis Conference in Atlanta, GA, February 8-11, 2014
Clinical Study Results for Novel Iron Replacement Drug Triferic(TM) Demonstrate Significant ESA Sparing and IV Iron Reduction While Maintaining Hemoglobin in CKD-HD Patients
WIXOM, MI, Jan 07, 2014 (Marketwired via COMTEX) -- Rockwell Medical, Inc. RMTI +3.71% , a fully-integrated biopharmaceutical company targeting end-stage renal disease (ESRD) and chronic kidney disease (CKD) with innovative products and services for the treatment of iron replacement, secondary hyperparathyroidism and hemodialysis, announced today that its abstract "Triferic(TM) (Soluble Ferric Pyrophosphate) Administered via Dialysate Maintains Hemoglobin and Reduces ESA and IV Iron Requirements in CKD-HD" was selected as the best abstract submitted to the 34th Annual Dialysis Conference to be held in Atlanta, Georgia, February 8-11, 2014. The Company will be presented the Award by the President of the International Society for Hemodialysis during the Award Ceremony.
Rockwell's PRIME study was a nine-month, prospective, randomized, placebo-controlled, double-blinded, multi-center study in United States that randomized 108 patients equally to dialysate containing Triferic(TM) (iron) versus conventional dialysate. The objective of the study was for patients in both groups to maintain their Hgb between 9.5 - 11.5 g/dL for the duration while adhering to the same erythropoietin stimulating agent (ESA) and IV iron dosing criteria. The PRIME study successfully met its primary endpoint, demonstrating that regular administration of Triferic(TM) via dialysate reduced the usage of ESA a statistically significant 37.1% compared to placebo, while maintaining iron balance and maximizing iron delivery. Among the hypo-responsive patients in the study, those who do not respond well to ESA therapy, Triferic(TM) reduced ESA use by 74.4% compared to placebo, including a 9% reduction in baseline ESA in the Triferic(TM) group. Triferic(TM) also reduced IV iron requirements by 45% compared to placebo. The significant ESA sparing and IV iron reduction from Triferic(TM) was observed without an increase in serum ferritin or transferrin saturation, demonstrating that the Triferic(TM) (iron) being delivered to the patient was being utilized as intended and was not being trapped or stored. [Read more]
PKD and Kidney Disease Alternative Medicine Treatments
From OnlyMyHealth.com
Alternative Treatments for Kidney Disease
Consider Dandelion Roots and Leaves, Apple Cider Vinegar, Baking Soda, Garlic, Legumes and Sprouts [Read more]
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