From Linlithgow Gazette, Linlithgow, Scotland
Diving in to help kidney charity
A caring 11-year-old is swimming in a tank full of sharks to raise money for a charity which means so much to his family.
Calum Graham, of Queensferry, will don a wetsuit and dive into a tank with tiger sharks at Deep Sea World tomorrow (Saturday, August 24) to raise cash for Polycystic Kidney Disease Charity (www.pkdchar ity.org.uk).
He is raising cash for the charity as his dad Niki suffers from the disease and is currently awaiting a transplant.
Niki has to spend five hours a day, three times a week, hooked to a dialysis machine.
Calum said: ‘‘Even though my dad looks well his body isn’t and he is in real need of a new kidney and has been on the transplant list since November 2011. Raising money for this charity will hopefully raise more awareness about the disease. ”
Niki said: ‘‘Calum is one of the kindest, most thoughtful and bravest kids I have ever known. He has seen me, health wise, at my best and at my very, very worst and has always stayed strong.’’ [Read more]
From Playbill.com, by Carey Purcell
The third annual Broadway Sings for PKDis held Aug. 21 at 11:30 PM at 54 Below.
The concert, which benefits the Polycystic Kidney Disease Foundation, features new musical theatre songs by emerging writers. Composers include Gaby Alter, Landon Braverman, Derek P. Hassler, Timothy Huang, Bob Kelly, Itamar Moses, Kelly Pomeroy and more.
Hosted by Ben Cameron (Wicked), the concert's performers include Ali Ewoldt, (Les Miserables, The Fantasticks), F. Michael Haynie (Wicked, Dogfight),Amber Iman (Soul Doctor), Janet Krupin (Hands on a Hardbody, Bring it On), Bryce Pinkham (A Gentleman's Guide to Love and Murder, Love's Labour's Lost), Kate Rockwell (Rock of Ages, Bring it On), Robb Sapp (Shrek, Wicked), Tally Sessions (Big Fish, Yank) and Melanie Burg.
Rachel Kunstadt produces and directs the event, and Yan Li is the musical director.
Proceeds from the evening go to the Polycystic Kidney Disease Foundation, which "promotes programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for Polycystic Kidney Disease and improve the lives of all it affects." [Read more]
Gift of Life
From Bella Magazine, by Pam Childs
Beauty from the Inside Out: Saving a life brings friends together againPatti Gaddis was searching for friends on Facebook when she read something that alarmed her.
A childhood friend, Trenia Burkett, indicated in a post that she was seriously ill. One of her children had written, “Momma, it’s going to be OK.”
Patti did some digging and learned that Trenia had polycystic kidney disease (PKG) and needed a kidney. PKG is an inherited disease that causes the kidneys to enlarge and cysts to form on them. Eventually, it leads to end-stage kidney failure.
A mom herself, Patti couldn’t imagine Trenia’s children losing their mom in her early 50s.
“All I needed was to read one of her kid’s comments, and it hit me,” said Patti. “You have two kidneys, you know you’re healthy. Share your health’.’’
Patti called Trenia. [Read more]
From Fox2Now.com, St. Louis, MO, by Tom O'Neal
CRYSTAL CITY, MO (KTVI)– We first introduced you to the Derque family of Crystal City about a year and a half ago. At that time, 7-year old Kate Derque and her 12-year old sister, Abbi both needed double organ transplants. A genetic disease called Polycystic Kidney Disease was destroying their kidneys and liver. Kate was getting dialysis three times a week. Abbie was getting monthly checkups. Abbi had had a recent scare with bleeding in the liver. Both were on the waiting list for a transplant.
Middle child, John, was healthy. Their mother, Kim refused to feel sorry for herself or let her children feel sorry for themselves. She was determined that they not be defined by their disease.
Our followup report found a big change in the family’s situation. In May of this year, Kate now 9, underwent a 10 hour surgery at Cardinal Glennon Children’s Medical Center to receive a new kidney and new liver. Things went well and Kate has had a good recovery.
But the family’s wait is not over. Abbi is still waiting for a similar transplant. Kate was transplanted first because she was higher on the list. Abbi is doing pretty well right now, but the call could come at any time. She says waiting is the hard part. And right now, she can’t really participate in sports and has to stay within three hours of the hospital in case that call comes. Both girls were anxious to start school.
Kim says it’s hard to find words to express her gratitude to the donor family that gave Kate a new lease on life. She does not know the identity of the donor. Now, they take it one day at a time to wait for a transplant that will give Abbi a chance at a normal life.
This Sunday evening, August 25th Mid-America Transplant Services will hold its annual Candlelight Memorial Ceremony. It’s a chance for MTS donor families and recipients to come together and honor the gift of life. Along with other recipients, Kate will be handing out roses to donor families at the event. It will be held at Donor Memorial Monument and Park. That’s 1110 Highlands Plaza Drive East. (In the area where the old Arena was located) The public is invited to share in the event.
For more information you can visit the MTS website at www.mts-stl.org
PKD Research
From Noozhawk.com, Santa Barbara, California, by UCSB Office of Public Affairs
UCSB Professor Joins Grant-Reviewing Body of National Institutes of Health
Thomas Weimbs, one of the world's leading experts on polycystic kidney disease and an associate professor in UC Santa Barbara's Department of Molecular, Cellular, and Developmental Biology and at the campus' Neuroscience Research Institute, has been appointed as a member of the Center for Scientific Review's Kidney Molecular Biology and Genitourinary Organ Development (KMBD) study section.
"It is an honor to be a member of an NIH study section," Weimbs said. "It goes to emphasize that there is a lot of medically relevant research being conducted at UCSB even though we don't have a medical school here."
Research in the Weimbs Lab at UCSB focuses on two related areas of investigation: autosomal-dominant polycystic kidney disease (ADPKD) and epithelial cell polarity and important cellular proteins essential for the transport of membranes inside cells. ADPKD is a very common genetic disease that leads to kidney failure and for which no approved treatment is available.
"Congratulations!" USCB Chancellor Henry Yang wrote in an email to Weimbs. "Your service in this critical NIH position is a reflection of your renowned research expertise and achievements in kidney disease, and will help to further advance national biomedical research."
As a standing member of the KMBD study section, Weimbs will review dozens of NIH grant applications each year of his six-year term. [Read more]
"It is an honor to be a member of an NIH study section," Weimbs said. "It goes to emphasize that there is a lot of medically relevant research being conducted at UCSB even though we don't have a medical school here."
Research in the Weimbs Lab at UCSB focuses on two related areas of investigation: autosomal-dominant polycystic kidney disease (ADPKD) and epithelial cell polarity and important cellular proteins essential for the transport of membranes inside cells. ADPKD is a very common genetic disease that leads to kidney failure and for which no approved treatment is available.
"Congratulations!" USCB Chancellor Henry Yang wrote in an email to Weimbs. "Your service in this critical NIH position is a reflection of your renowned research expertise and achievements in kidney disease, and will help to further advance national biomedical research."
As a standing member of the KMBD study section, Weimbs will review dozens of NIH grant applications each year of his six-year term. [Read more]
From 4-Traders.com
Research and Markets: Polycystic Kidney Disease - Pipeline Review, H2 2012This research provides an overview of the indication's therapeutic pipeline. This report provides information on the therapeutic development for polycystic kidney disease, complete with latest updates, and special features on late-stage and discontinued projects. It also reviews key players involved in the therapeutic development for polycystic kidney disease.
The information is built using data and information sourced from proprietary databases, company/university websites, SEC filings, investor presentations and featured press releases from company/university sites and industry-specific third party sources.
Scope
- A snapshot of the global therapeutic scenario for polycystic kidney disease.
- A review of the polycystic kidney disease products under development by companies and universities/research institutes based on information derived from company and industry-specific sources.
- Coverage of products based on various stages of development ranging from discovery till registration stages.
- A feature on pipeline projects on the basis of monotherapy and combined therapeutics.
- Coverage of the polycystic kidney disease pipeline on the basis of route of administration and molecule type.
- Key discontinued pipeline projects.
- Latest news and deals relating to the products. [Read more]
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