From DailyStrength.org, The PKD Support Group
Really Need Help and Input
Most of you probably won't remember my sister, but she has PKD, has survived peritoneal cancer as Helen has done, survived lung cancer, you name it, she has survived it. NOW, she has fallen and broken her wrist, naturally the arm where her fistula is located and it wasn't a clean break either, a nasty one!
From WBOC.com, Channel 16 serving Delaware, Maryland and Virginia
Kent Co. Woman Getting New Kidney Through Swapping Process
MILFORD, Del. (WBOC)- For people who need an organ transplant, time on the waiting list is often measured in years. But a Kent County woman is getting off the list much quicker, thanks to a unique process.
From RenalDietGuides.com
From Beaver Dam Daily Citizen, Beaver Dam, Wisconsin
WAUPUN — When Dominique Oppermann was told she had a kidney disease it was a shock to the whole family.“We weren’t exactly planning for it,” said her husband Dave, who works at Mercury Marine in Fond du Lac. “It was a blow to us,” her son Travis, 26, said. “It was unsettling,” said her son Jeremy, 22.
That’s because although her disease, polycystic kidney disease, is hereditary, she never knew she was prone to have it because she was adopted in Greece when she was 11 months old.
From Lansing State Journal, Lansing, Michigan
For more than 20 years, Roxanne Frith has lived with the knowledge that she drew the short straw in a genetic game of chance.In line with the probabilities, about half of those in her family — Frith among them — have inherited polycystic kidney disease (PKD). And she’s now reached the point where she needs a kidney transplant.
But the longtime Lansing photographer and teacher views herself as fortunate in many respects.
Medical treatment has come a long way since Frith’s father died of the disease, she said. Her only sibling, who does not have PKD, is donating a kidney. And Frith’s colleagues in the Lansing arts community are pulling together to support her through the surgery and recovery process.
“I am overwhelmed. It has brought me to tears more than once,” Frith said.
From PKD Will Not Beat Me.com, a blog by Valen Keefer
During my recent eight-day stay at Sutter Auburn Faith Hospital, I liked to keep the curtain by my hospital room door partially closed. The first thing I would see were the person’s shoes walking into my room. I loved when I would see Noah’s shoes enter my room. I would yell, “Noah!” Then see his handsome face.I had been in the hospital almost a week when I started my liquid/soft diet. One particular evening, my dinner consisted of puree soup, jello, mint tea and ice cream. Noah was sitting next to my bed as I slowly started to eat my dinner. The door to my room opened and we both looked down at the shoes entering the room. There was something else entering my room. It looked like the person was pushing a dolly. Noah and I looked at each other with puzzled expressions when all of a sudden a woman and a harp on wheels entered my room. I felt confused and excited. I wondered if someone ordered this and why there was a woman, with a warm smile on her face, and a harp now in my room.
Chinese Treatment of PKD
From PKDClinic.Blogspot.com
Can a Brother of a PKD Patient Give a Kidney Transplant
Patient: Hello, doctor, my younger brother is a PKD patient, and he is waiting for a kidney transplant while undergoing dialysis. I am his older brother, it seems that I am the only one who can help him. Here I want to know whether kidney transplant is the only way and how long can he live if receiving the kidney transplant. Many thanks.
Doctor: I can understanding your current feeling. It seems that dialysis or kidney transplant is the only way to treat kidney diseases in most countries. However, in China, there has no kidney transplant. That is to say, it is such a hospital that helps kidney disease patients avoid kidney transplant and dialysis or get rid of dialysis.
The therapy used in China is Micro-Chinese Medicine Osmotherapy+Immunotherapy... [this proves you can learn something new everyday. In this case that China does not perform kidney transplants...]
From KindeyCaresCN.Blogspot.com
Chinese herb is special Chinese medicines and it has thousands of years’ history in China. Nowadays more and more westerners are becoming interested in Chinese herbs and they are wandering how these herbs can shrink the multiple cysts in the kidneys and why it can repair kidney damages and improve kidney functions.
One of the merits of Chinese medicine is that it can solve the root cause of the disease and does not cause any side effects or pains to the patients. The Chinese medicine emphasizes the concept of overall treatment. Though it takes effects more slowly compared with the Western therapies, its curative effects can last for a long time. And as we all know that the PKD is a chronically progressive kidney disease so that it needs continuous treatment and there is no instant way to cure it. The Chinese medicines can not only treat the multiple cysts in the kidneys, it can also improve kidney functions and enhance the patients’ immunity and help build up the patients’ physical health. [Now I understand why China puts emphasis on its traditional and holistic medicine if the policy is to minimize dialysis and completely avoid kidney transplants.]
From YouTube.com, posted by KidneyServiceChina.com
Before he came here, his creatinine level was 4.25 umol/L. After one and a half months later with Micro-Chinese Medicine treatment, now, his creatinine level has been reduced to 3.4 umol/L.
"The doctors here treat me the best way I can imagine. It was different than I used to be treated in Greece. And I am satisfied for my treatment. I will continue Micro-Chinese Medicine for my better health."
"The doctors here treat me the best way I can imagine. It was different than I used to be treated in Greece. And I am satisfied for my treatment. I will continue Micro-Chinese Medicine for my better health."
From Fu Neng Kidney Disease Hospital
How to treat High Blood Pressure Caused by Polycystic Kidney Disease (PKD)?
Renal hypertension caused by PKD is different from primary high blood pressure. For high blood pressure caused by PKD, the key point of high blood pressure treatment is to treat polycystic kidney and reduce the pressure of cyst oppressing kidney.People with Polycystic Kidney Disease and high blood pressure need to treat Polycystic Kidney Disease, which is the root cause of high blood pressure. PKD can be treated by Funeng Therapy.
Funeng Therapy develops from traditional Chinese medicine (TCM). The huge pharmacopeia of Chinese medicine contains plant, animal, mineral origin, most of them herbs, some of which have good effects on treating Polycystic Kidney Disease. These herbs, which are bitter if you take them orally, can be micronized and osmosed into kidney lesions with the help of osmosis devices. It has been practiced in clinic for more than 20 years and proved great effects on treating PKD.
Research
From PKDCure.org, The PKD FoundationTwo Top Doctors Dedicated to Ending PKD Honored
KANSAS CITY, Mo. – Dr. Vincent Gattone and Dr. Dorien Peters have been awarded the Lillian Jean Kaplan International Prize for Advancement in the Understanding of Polycystic Kidney Disease (PKD). The award is a partnership between the PKD Foundation and International Society of Nephrology (ISN) and recognizes a medical professional or researcher exhibiting excellence and leadership in PKD research and whose work demonstrates tangible achievement toward improving knowledge and treatment of PKD.
From Proceedings, National Academy of Sciences, USA
Polycystic kidney disease (PKD), the most common genetic cause of chronic kidney failure, is characterized by the presence of numerous, progressively enlarging fluid-filled cysts in the renal parenchyma. The cysts arise from renal tubules and are lined by abnormally functioning and hyperproliferative epithelial cells. Despite recent progress, no Food and Drug Administration-approved therapy is available to retard cyst growth. MicroRNAs (miRNAs) are short noncoding RNAs that inhibit posttranscriptional gene expression. Dysregulated miRNA expression is observed in PKD, but whether miRNAs are directly involved in kidney cyst formation and growth is not known. Here, we show that miR-17∼92, an oncogenic miRNA cluster, is up-regulated in mouse models of PKD. Kidney-specific transgenic overexpression of miR-17∼92 produces kidney cysts in mice. Conversely, kidney-specific inactivation of miR-17∼92 in a mouse model of PKD retards kidney cyst growth, improves renal function, and prolongs survival. miR-17∼92 may mediate these effects by promoting proliferation and through posttranscriptional repression of PKD genes Pkd1, Pkd2, and hepatocyte nuclear factor-1β. These studies demonstrate a pathogenic role of miRNAs in mouse models of PKD and identify miR-17∼92 as a therapeutic target in PKD. Our results also provide a unique hypothesis for disease progression in PKD involving miRNAs and regulation of PKD gene dosage.
From Hindawi.com, Case Reports in Medicine
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