From PKDClinic.blogspot.com
The Symptoms of Children Polycystic Kidney Disease
It is a dominant inherited disease, some children may get it as soon as he was born, but in general have no obvious symptoms until they are about 40 years old. Nothing is absolute, some children can also show symptoms, so parents need to notice it. If parents know the symptoms of Children Polycystic Kidney Disease, they can judge whether children get disease and it is severe or not.
● Bellyache...
● Bellyache...
From PKDClinic.org
How long can I live with Stage 5 Polycystic Kidney Disease? What is my life expectancy? One patient asked me again and again, yesterday. I can deeply understand his scare, because stage 5 PKD means nearly all of his kidney function has been damaged by enlarged kidney cysts.
In stage 5 Polycystic Kidney Disease, patients only have 15% kidney function or less, so they have to live with some kidney replacement treatments or kidney repairing therapies. Most often, it is their own condition and treatment option that decide their life span. From the following content, you can find out different life expectancy of stage 5 Polycystic Kidney Disease patients with various treatments.
From KidneyABC.com
A patient consults us that he is a PKD sufferer and commonly experiences stomach ache and bloating.These conditions often make him feel full easily. He is wondering if stomach ache and bloating related to PKD or indicate other problems.The following article will give an explanation to the patients who have the same condition.
Reduced stomach volume
There is a variety of systems in our body and they are interact in certain ways.As the cysts enlarge severely in PKD, they can compress the stomach to reduce its room.When there is no much room in the stomach, it can make you feel full and lose appetite.
If stomach volume is the issue,you should try smaller but more frequent meals.That way your stomach does not feel full,but you’re still getting the nutrition you need.
Walk for PKD
From IndieGoGo.com
Albuqurque, New Mexico Chapter of the PKD Foundation is hosting a Bake Sale and Walk for PKD on July 20. All proceeds to go to PKD Foundation.
From Ohio.com, the online Akron Beacon Journal
Front and center in the National Kidney Foundation’s Northeast Ohio Kidney Walk on Sunday at Great Lakes Science Center, 601 Erieside Ave., Cleveland, will be a brother and sister from Copley.
They’ll support each other and others during this awareness and fundraising walk, as they do on their daily journey battling a very rare kidney disease. Registration is at 8 a.m. followed by the walk at 9.
Sean Roach of the National Kidney Foundation shared their story:
“Siblings are often handed down the same traits, everything from hair color to height, but sometimes the genetic roll of the dice results in something unprecedented. For Rachel Sudhakaran, 29, and Neil Sudhakaran, 27, their parents’ pairing produced an extremely rare form of polycystic kidney disease.
Donate a Life
From ThisIsLancashire, United Kingdom
Thanks mum for giving me your kidney
“I CAN’T believe how quickly the time has flown by. Last year I was panicking about having the operation and getting through it.
“I couldn’t even think about how I would be now,” said John, of Turks Road, Radcliffe.
The 47-year-old was born with polycystic kidney disease, which had caused his renal function to fall to just 12 per cent.
Other members of his family had died from the disease and his father had a kidney transplant 22 years ago. It made John forgetful and increasingly tired due to the pressure on his other organs, and he was close to needing regular dialysis treatment.
Help with Kidney Transplant Expenses
From Tampa Bay Times
Donna Neal is awaiting a lifesaving kidney transplant as treatment for polycystic kidney disease. She already has the kidney — her niece Sharon Dunlap is the donor — but the procedure will be costly.
That's where the community comes in.
VFW 8681 and the National Foundation for Transplants (NFT) are raising funds for Neal's expenses with a pasta dinner from 2 to 7 p.m. June 15 at 18940 Drayton St. in Shady Hills. Dinner costs $6 a plate and includes mostaccioli, salad, a roll and dessert. There will be a cash bar, door prizes, a raffle and live entertainment from Jennifer McRae, JD and Zetha Lewis, the Farmboyz and Mudbone Mike & Barefoot Billy.
From PKDWillNotBeatMe, a blog by Valen Keefer
It felt like an elephant was sitting on my chest. I was taking shallow breaths as the pain in my upper stomach was unbearable. A light touch of my arm rubbing across my stomach made me want to jump through the ceiling from excruciating pain. I was lying on a hospital gurney in the emergency room of Sutter Auburn Faith Hospital staring straight ahead waiting for the ER doctor to return with my blood work results. It was one week ago today when the ER doctor stood before me and confidently said, “You have pancreatitis.” My jaw dropped and I said, “No, no!” The doctor said, “The admitting doctor will visit you shortly and you will be transferred to a room upstairs.” I lay there in shock. Sheer disbelief. I began to softly sob as tears streamed down my cheeks and memories from the past consumed my every thought.
From Shelbyville Time-Gazette
Softball umpire Brad McTigue has had a rough go of it lately. Diagnosed with Polycystic Kidney Disease, his kidneys are struggling and only functioning at 10 percent.
Despite the health struggles, McTigue participated in the annual Spring Fling in Murfreesboro, umpiring the state softball tournament. Most people, at his stage of the disease, are too weak to work and many require dialysis.
From CovNews.com, Covington
A bike ride to benefit Vince Lowe Kidney Fund, June 8. Vince Lowe might look like a picture of strapping health, but this biker has been waiting and searching for a kidney since 2009.
Dialysis
From Digital Journal
Sometimes kidneys can decrease in function over a period of time, such as when someone has Chronic Kidney Disease (CKD) or Polycystic Kidney Disease (PKD). Other times kidneys fail unexpectedly due to trauma, reaction to medications or other situations that damage the organ. This sudden loss of kidney function is called Acute Kidney Disease. Depending on the reason for the loss of kidney capacity, the need for dialysis could be something that is planned in advance or it might be a decision made quickly to save a life. Under either circumstance, dialysis patients need support in adjusting to their new situation. A dialysis center in Houston, Dialyspa, is working to make this transition easier for dialysis patients by offering personal tours, education and on-going support groups.
PKD Diet
From Fu Neng Kidney Disease Hospital
Care should be taken with amounts of water, salt, acid and other nutrients... Read more.
Research
From PKD Foundation
From Nature.com
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