From NeighborNewspapers.com, Atlanta, Georgia
Cocktails for a Cure to raise funds for kidney disease
In a news release, the Atlanta chapter of the PKD Foundation announced it will host its second Cocktails for a Cure event Saturday from 7 to 10 p.m. at Tongue & Groove in Lindbergh City Center in Buckhead
Participants will be part of an evening to help raise money to find a cure for polycystic kidney disease, which is one of the most common, life-threatening genetic diseases affecting thousands in the U.S. and millions worldwide. The event will include music, catering by Chef Drew Ihrig at Endive, a silent auction and an opportunity to win a raffle prize.
“We are thrilled to host the [fundraiser] again this year,” said Marlene Stewart, PKD Atlanta chapter coordinator. “We invite the metro Atlanta community to help support this important cause by purchasing a ticket to attend or by making a monetary donation online, which will help fund vital research to find a treatment and cure for polycystic kidney disease.”
Tickets purchased online are $25 for single admission (one drink ticket) or $40 per couple (two drink tickets) and $30 for single admission (one drink ticket) or $45 per couple (two drink tickets) the night of the event.
Save A Life
New Hampshire woman makes public plea for her life
A Londonderry woman is hoping someone will be able to help her live a longer life.
Rosemarie Meuse has polycystic kidney disease. Over time, her kidney function is failing.
Her husband planned to donate one of his kidneys, but he died suddenly days before going to the hospital for a series of tests to see if he was a match.
Now Meuse, grieving the loss of her husband, hopes a stranger will come to the rescue.
"He was the love of my life and he was very selfless and kind," Meuse said of her late husband Philip, who went into cardiac arrest and passed away in March. [Read more]
Rosemarie Meuse has polycystic kidney disease. Over time, her kidney function is failing.
Her husband planned to donate one of his kidneys, but he died suddenly days before going to the hospital for a series of tests to see if he was a match.
Now Meuse, grieving the loss of her husband, hopes a stranger will come to the rescue.
"He was the love of my life and he was very selfless and kind," Meuse said of her late husband Philip, who went into cardiac arrest and passed away in March. [Read more]
How to help
To be a living donor, you can be a man or woman in general good health.
For more information on how you may be able to help, contact the following person:
Kristen Pelletier, RN
Living Donor Transplant Coordinator
Brigham and Women's Hospital
617-732-8683
From BCRNews, Bureau County Republican, Illinois
ANNAWAN — Like many other girls, 5-year-old Katelyn DeRycke loves to play outside, to swing on her swingset, to go fishing and swim. She loves playing with her Barbie dolls and with her 8-year-old sister Kyla and the family puppy. She likes playing with the IPAD.But unlike most other little girls, Katelyn has some special medical challenges. As a newborn, Katelyn was diagnosed with Autosomal Recessive Polycystic Kidney Disease, a disease which claimed the life of her brother Noah in September 2003 when Noah was just 5 hours old....
Living With PKD
From PKDCure.org, The PKD Foundation
Voices of PKD, Stories:
Voices of PKD, Stories:
A Curvy Road to Diagnosis
LeeAnn Hujanen went through a dramatic turn of events that led to her PKD diagnosis on April 11, 2013. Adopted as a child, LeeAnn was unsure of her biological medical history, and didn't know PKD ran in her biological family. In 1999, while she was pregnant with her oldest daughter, the ultrasound tech noticed spots on her kidney. Her obstetrician said not to worry about it, and that they would keep an eye on it. So LeeAnn put the kidney spots out of her mind. [Read LeeAnn's story and many more]From PKD Foundation, YouTube.com (note: these presentations are each about 45 minutes or longer)
From KidneyServiceChina.com
Exercises and Polycystic Kidney Disease (PKD)1. Running, walking, swimming, biking, golfing and rowing are recommended to help you stay as healthy as possible.
2. Mind-body workouts including Tai Chi, yoga, and stretching are also beneficial. These types of physical activities can help relieve stress and control blood pressure due largely to their emphasis on concentrated breathing and relaxation. Add 2-3 sessions of mind-body workouts to your fitness routine.
Types of exercises that should be avoided
a. Avoid contact sports like football, basketball, as a blow to the enlarged kidneys may lead to further impairment, including burst or rupture of cysts.
b. Repetitive impacts sports like cross-country biking and horseshoe riding are suggested to avoided.
Cautions
Always stay well hydrated and drink lots of water while exercising, as PKD have trouble retaining water. Drinks that contain caffeine should be avoided, because they may increase the size of kidney cysts. Avoid high salt content drinks
From FuNeng Kidney Disease Hospital
What causes Polycystic Kidney Disease in Children?
What are the causes of Polycystic Kidney Disease in Children? Polycystic Kidney Disease in Children is a genetic disease, which can do harm to the children. Therefore, if you want to treat your child’s kidney disease, you should know what causes of Polycystic Kidney Disease in Children.1. Gene deletion: Polycystic kidney disease in children is autosomal recessive inheritance, both parents have a genetic changes to make their children suffer from this disease, the morbidity is 25%.
2. Pathogenesis: Renal cyst is derived in renal epithelial structure, primary in renal tubule and pao capsule. All renal cysts have certain common structural components, including the cortex, the intumescent the cyst containing glomerular filtrate.
(1) ADPKD: more than 95% of polycystic kidney disease in children is caused by abnormal genes on the short arm of chromosome 16. Besides, infection and poisoning effect on tubular, stimulate the cyst genes changed the tubular cell metabolism, which directly cause epithelial cell necrosis and obstruction also promoting cell proliferation to make the cyst formation.
(2) ARPKD: The children’s parents don’t suffer from this disease, but they all carry the disease gene to make the children disease. It is a rare in polycystic kidney disease.
From GoBookee.net, Free eBooks download
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