From Congressional Record, 113th Congress, Library of Congress
SENATE RESOLUTION 172--DESIGNATING THE FIRST WEDNESDAY IN SEPTEMBER 2013 AS ``NATIONAL POLYCYSTIC KIDNEY DISEASE AWARENESS DAY'' AND RAISING AWARENESS AND UNDERSTANDING OF POLYCYSTIC KIDNEY DISEASELife with PKD
From PKDBattle.blogspot.com
Principles of Daily Life for PKD Patients
Ⅰ. Life care:
Firstly, patients should improve their both mental and physical rest. For example, Nephrotic Hypertension patients should check blood pressure regularly and adjust their bed rest time according to their blood pressure change. [Read more...]
Firstly, patients should improve their both mental and physical rest. For example, Nephrotic Hypertension patients should check blood pressure regularly and adjust their bed rest time according to their blood pressure change. [Read more...]
From DailyStrength.org
“I think it actually takes a lot of guts for us to come to terms with this that we are not super heroines and it is not about limitations, but preservation to what we have here and now and going into the future.”
This powerful statement came from my dear friend and two-time kidney transplant recipient, Mary Wu. This really spoke to me. I am learning a lot with age and through my health issues this year. Instead of focusing on things that others can do that may not be a practical life path for myself, I am focusing on the beautiful things that I can do and the opportunities that surround me. While these opportunities might be a lot simpler than some folks, they bring me great joy. I think that is what we are all striving for in life: happiness. [Read more]
From KMTV, Omaha, Nebraska
PKD (Polycystic Kidney Disease) Walk for the cure
Join us for a great time celebrating our fundraising efforts throughout the year. We will have music and activities featuring the Penny Kids Dash starting at 8 am. There will be a small raffle, including a chance to win a pair of Husker Tickets! If you wish to join please visit walkforpkd.org and register today!Occurs once: Oct 12, 2013 (8:00 AM to 12:00 PM)
Contact Name: Jennifer Russell
Contact Email: nebraskawalk@pkd.org
Contact Phone: 402-714-3036
Location: Walnut Creek Recreational Area
370 and 96th 9902 Schram Rd, Papillion, NE 68046
From KidneyServiceChina.com
Is Seafood Diet Ok for Polycystic Kidney Disease
Polycystic Kidney Disease, or PKD, refers to a condition that fluid-filled cysts invade the kidneys. These cysts wreak havoc on the kidneys, which effect the rest of the body. Common symptoms of this disorder include pain especially in the lower abdomen or back, blood during urination, etc. A healthy diet can help slow down the progression of kidney damage and guard against potential complications. Is seafood diet Ok for PKD patients?
Actually, seafoods should be limited for people with PKD, as they are a rich source of protein. In generally, low protein diet is suggested in case of polycystic kidneys. Here is the reason:
When protein is metabolized by the liver, it leaves a waste product called urea. Normally, urea is expelled by kidneys, in PKD, the kidney function is damaged and urea starts building up which is harmful to the body. A low protein diet will put less strain on the diseased kidneys.
From KUMC News, University of Kansas Medical Center
Vitamin B3 holds promise for treating polycystic kidney disease, research suggests
Despite decades of research, treatments for polycystic kidney disease remain elusive. Now a new study by KU Medical Center researchers suggests that one mechanism for controlling the ravages of the disease might be found in vitamin B3.Polycystic kidney disease is one of the most common life-threatening genetic diseases, affecting 600,000 Americans and 12.5 million people worldwide. People who inherit PKD develop kidney cysts that grow and multiply slowly over time — patients in their 20s might have few symptoms, but by the time they are into their 40s or 50s, normally fist-sized kidneys containing these fluid-filled sacs can grow to the size of a football, causing pain and destroying kidney function. With a research program dating back to the 1950s, KU Medical Center scientists are internationally recognized experts on the disease — and acutely aware that there is still no cure.
Recently, however, Xiaogang Li, Ph.D., an associate professor of Nephrology and Hypertension and a member of the KU Kidney Institute, found that vitamin B3 helped naturally inhibited the activity of a protein called Sirt1 that influences the formation and growth of cysts. Li and colleagues were able to show that vitamin B3 slowed the creation of cysts and restored kidney function in mice with PKD. The results were published in the June 17, 2013 Journal of Clinical Investigation. [Read more]
From KidneyFailureWeb.com
From KidneyFailureWeb.com
From Genetics Home Reference, National Institutes of Health
Medullary cystic kidney disease type 1
Medullary cystic kidney disease type 1 (MCKD1) is an inherited condition that affects the kidneys. It leads to scarring (fibrosis) and impaired function of the kidneys, usually beginning in adulthood. The kidneys filter fluid and waste products from the body. They also reabsorb needed nutrients and release them back into the blood. As MCKD1 progresses, the kidneys are less able to function, resulting in kidney failure.
Declining kidney function in people with MCKD1 leads to the signs and symptoms of the condition. The features are variable, even among members of the same family. Many individuals with MCKD1 develop high blood pressure (hypertension), especially as kidney function worsens. Some develop high levels of a waste product called uric acid in the blood (hyperuricemia) because the damaged kidneys are unable to remove uric acid effectively. In a small number of affected individuals, the buildup of this waste product can cause gout, which is a form of arthritis resulting from uric acid crystals in the joints. [Read more]
From StemCell-Kidney.com
The Symptoms of Polycystic Kidney Disease
Symptoms of polycystic kidney disease:
1, urinary abnormality
Main show of Polycystic Kidney Disease is proteinuria and hematuria. It is one of the symptoms at the early stage. Proteinuria is the most often symptoms. It is related to glomerular barrier function. Hematuria is the main factors in check that make polycystic kidney disease patient find themselves suffering from polycystic kidney. [Read more]
From AdverseEvents.com, (note: the web page for this story will not open)
FDA Advisory Committe to Evaluate Samsca for Treating PKD
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