Sunday, May 19, 2013

Donate a Life Stories

From KATU.com, Longview, Washington

Kidney connection: A new chance of life from 8-year-old boy

After 8-year-old Noah Waite-Brown died in a car crash along with his father last month, his family decided to donate his organs.  His heart is now beating in a 3-year-old boy. His liver gave life to a 1-year-old. Part of his eyes now give other kids the chance to see.  And one of Noah’s kidneys didn’t go far. 

As it turned out, Tammie Mattison, who works at Noah’s school, Columbia Heights Elementary School in Longview, was the recipient of the little boy’s kidney – a gift that overwhelms her.

“He’s my hero,” she says simply.


From Detroit.CBSlocal.com, Detriot, Michigan
What are the chances you’d give a co-worker a kidney?
Kathy Beyers and Mary Simon worked together for 25 years and eventually became exercise buddies. Today, the two share an even deeper bond after Beyers gave Simon a kidney.


From MyProgressNews, Parker, PA
Whyte’s Comet Market in Parker will be celebrating our 15 year anniversary at our present location this June. Whyte’s Comet is owned by Jay and Diane Whyte as a family owned business, with their son Allen as head of the meat department and butcher. The Whyte family, thru parents and grandparents, have been the grocery business for over 60 years. Jay and Diane have decided to use this special anniversary occasion to raise money for the Polycystic Kidney Disease Foundation.

This disease has affected Jay, their two daughters, his sister, and his mother and other family members. Along with family, it has also affected our friend and Pepsi sales representative, Mike Eismont and his family. Both Jay and Mike have already undergone kidney transplants from this disease. A local connection has been made with our family and Dr. Patricia Gabow, of Denver, Colorado, who is the daughter of Mr. and Mrs. Richard Helmintoller of St. Petersburg. She along with Irene Duley, RN, ran a study at Denver Children’s Hospital for years, and which our daughters were lucky enough to participate in, thru the PKD Foundation. Our daughter Haley, still participates in a PKD Study at Emory University Hospital called the Crisp Study


From FrasierCoastChronicle, Australia
AT ONLY 21 years of age, Alan Smith was diagnosed with polycystic kidney disease.
It didn't come as a huge surprise; Alan knew he had inherited the genetic condition.
"I was born with it, I knew I had it," he said. "Basically if you're going to get kidney disease, this is the best one."
Polycystic kidney disease belongs to a group of diseases known as cystic kidney disease. It is characterised by the growth of abnormal blisters of fluid in the kidneys.  There is no cure but medical treatment can manage symptoms and reduce the risk of complications.
Alan was able to manage his condition until he turned 50, when he started dialysis.


From heraldargus.com, La Porte, Indiana

Annual PKD cruise set for Sunday

The Northern Indiana Chapter of Polycystic Kidney Disease will host its 5th annual Cruisin' for a Cure car show and 40-mile cruise Sunday at the La Porte County Fairgrounds.

There is no pre-registration for Cruisin' for a Cure, and charge to participate is $10 per vehicle.
The car show, which will be held rain or shine, is from noon to 2 p.m. The 40-mile cruise begins at 2:30 p.m. , and it is an all-wheels-are-welcome event.

"We do welcome anyone," said Laura Moyer, PKD Foundation Northern Indiana Chapter coordinator. "We welcome all of them not only antique autos. Doesn't matter what year, make or model all wheels are welcome. Motorcycles are welcome, too. If you got wheels you can come on in."



Living with PKD

From zocdoc.com
Q: The Polycystic kidney disease ended in renal failure and death for my mom and grandmother had one kidney leading to heart problems from strain causing her death. In 2009 CT showed 2 cm cyst on my right kidney and one on my ovary. At times my skin is almost transparent or thin and you can see these white criss-crossing patterns all over - they are raised looking like I have uneven skin these look like the models of ligaments and muscles you see on skeletons in any medical book or website. My polar seems to turn a pale kinda grayish yellow a weird color. I cannot find anything anywhere that fits this description.

A: It sounds like you have had some changes or concerning findings with your health recently, in addition to the family history of polycystic kidney disease. There are several reasons why the best thing for you to do right now is to see your primary care physician ...


From PKDCure.org, The PKD Foundation

PKD Facts, About the PKD Foundation.


From dailystrength.org

Want to post questions about kidney transplants.


From Glembook.com, 

New York State Department of Health, Children.  A health resource guide for families and schools.


From Glembook.com


From PR.com
On May 26, the Hamilton Chapter of the PKD Foundation of Canada will host a webinar by Dr. Marie Hogan of the Mayo Clinic in Rochester, MN, followed by a talk by two-time liver transplant recipient Jan Robertson, Co-Founder of The PKD Foundation of Canada.


Treatment

From pkdclinic.blogspot.com
Micro-Chinese Medicine can dilate the renal blood vessels, improve blood circulation, enhance the permeability of renal blood vessels, and reverse pressure difference between liquid in the cysts and liquid in the blood vessels out of the cysts, so as to make the liquid pass with the blood circulation gradually and excrete from body through blood circulation. Therefore, the cysts will contract and diminish at last.


Research

From sciencecodex.com
Experiments at Johns Hopkins have unearthed clues about which protein signaling molecules are allowed into hollow, hair-like "antennae," called cilia, that alert cells to critical changes in their environments.
Researchers found that the size limit for entry is much greater than previously thought, allowing most of a cell's proteins into cilia. The researchers believe that the specific collection of proteins in each cilium, customized to the needs of each cell type, is determined by whether and how cilia keep proteins inside once they enter –– not which ones they allow in initially

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